Hi! So We were at the Stollery yesterday for appointments and then had to go back this morning to do labs. Zach had to have nothing by mouth since super last night (14 hours). They took 6 viles of blood and did a urinalysis. They called at 4pm and his calcium has gone up. They do 3 types of calcium levels, however only 2 are really significant. Ionized Calcium (range is 1.00 - 1.24). PTH adjusted (range 1.09 - 1.25). So we need to keep Zach's calcium at the low end of these ranges to prevent kidney damage. Whats amazing to me is that a healthy persons calcium "stays" within this tiny window! Zach's however do not, he waxes and wanes. His levels today are:
Ionized Calcium 1.27
PTH adjusted Calcium 1.23
So one of the hard things about this disorder is that there is no home test. Jake says he is going to invent one so that Zach won't have to always go into the Stollery to get his blood checked.
We have some exciting news that I will post tomorrow! Night night xo
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