Romans 5:3-5

"We can rejoice, too, when we run into problems or trials, for we know they help us develop endurance. And endurance develops strength of character and character strengthens our confident hope of salvation. And this hope will not lead to disapointment. For we know how dearly God loves us, because he has given us the Holy Spirit to fill our hearts with his love." Romans 5:3-5

Saturday, 11 June 2011

Whats the plan

So much has happened since we came back from the Conference.  The Doctor in Maryland has accepted Zach into her treatment program!  We are so thankful that Zach will be seen by a Doctor who is familiar with his condition.  As long as he is in the clinical trial the cost of  his PTH injections will be covered by NICHD (National Institute of Child Health and Human Development in Bethesda, Maryland, USA).  This is VERY GOOD news as the injections are between $60,000 to $100,000 per year!!!!  What this means for our family it that every 3 months Zach will have to go to Maryland and stay in the hospital for 10 to 14 days.
We also had some other great news.   After 10 months of us fighting and pleading with Zach's Doctors here in Edmonton to send his blood to the US to have it checked for two different genetic disorders.....they finally agreed to do it!  FINALLY!  Amazing what a little pressure will do....LOL!
And still more amazing news!  Zach and I (Tanis) fly to Maryland on June 19th and on the 20th Zach will start his treatment at NICHD!   AND we have been given the FLIGHTS!!!!  Amazing!!! 
Perry and I still just keep looking at eachother and shaking our heads.....God is SO good.  He has provided in ways we could never have imagined.

Luke 12:27-31
27Consider the lilies, how they grow: they neither toil nor spin, yet I tell you,  even Solomon in all his glory was not arrayed like one of these. 28But if God so clothes the grass, which is alive in the field today, and tomorrow is thrown into the oven, how much more will he clothe you, O you of little faith! 29And do not seek what you are to eat and what you are to drink, nor  be worried. 30For all the nations of the world seek after these things, and your Father knows that you need them. 31Instead, seek his kingdom,  and these things will be added to you.

Anxiety is a word that pretty much describes how we feel on any given day.  However God has shown us time an time again just how much He cares for us.  He continues to bless us with love and support from the most unexpected places.  I think that's the point.  My idea of what I think we need and how God chooses to show Himself to us are two very different things.  There is still alot of uncertainty medically and financially in regards to Zach's care, but one thing is certain.  God Knows.  Love P and T

No comments:

Post a Comment