Romans 5:3-5

"We can rejoice, too, when we run into problems or trials, for we know they help us develop endurance. And endurance develops strength of character and character strengthens our confident hope of salvation. And this hope will not lead to disapointment. For we know how dearly God loves us, because he has given us the Holy Spirit to fill our hearts with his love." Romans 5:3-5

Sunday, 18 December 2011

Rough week

Hi, so Zach has had a tough week.  For reasons we are not completely sure of, his calcium took a dive and was really low.  We had to go for labs Monday, Wednesday and Friday.  He has been very emotional, anxious and tired. Please pray that his calcium comes back up.  His levels have been so good since going on the PTH we kinda forgot how awful he feels with low calcium.

As you know we have been waiting for months for the Alberta Government to approve our request for the  Genetic testing that we need so they can determine the reason for Zach's hypoparathyroidism.  We have not heard from them, however God has provided another way to get it done. 

Our Doctor at the Stollery requested the specimen kit from Gene DX, they sent it to his office and on Friday he pulled Zach's blood!  Tomorrow we will Fedex it back to Maryland and then in 8 weeks we should know the name of Zach's disorder.

We have waited for what seems like forever to know what it is that Zach has.  As a parent, you want your child to be healthy and happy and when they aren't you just want to fix it.  Knowing what Zach has may shed some light on his medical needs.  "If you know the cause, you can anticipate the problem," this is a quote from a Doctor at the Hypopara conference.  It will enable us to be more proactive in his care, rather than reactive.  Knowing what it is will help us care for his needs and thus effect Zach's quality of life. 

We know that this is just "information".  Only God knows each and every detail of Zach's health.  We have learnt that know matter what the Doctor's say, think or do...or don't do (lol).  God is Sovereign.  We put our hope, faith and trust in Him.  It is hard at times to stay focused on "the things above"  especially when Zach's calcium is dive bombing in the other direction.  However, through the grace of God we just take each day as it comes knowing God has laid this path before us.

We are so thankful for your prayers and concern.  God Bless  xoxo
Zach with his 2 blood samples. 
 One to test for Calcium Receptor Gene (CASR) and the other to test for the  AIRE Gene
 (Autoimmune Poly glandular Syndrome type 1)

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