Romans 5:3-5

"We can rejoice, too, when we run into problems or trials, for we know they help us develop endurance. And endurance develops strength of character and character strengthens our confident hope of salvation. And this hope will not lead to disapointment. For we know how dearly God loves us, because he has given us the Holy Spirit to fill our hearts with his love." Romans 5:3-5

Wednesday, 1 February 2012

Countdown to Rare Disease Day

This February is special, it has 29 days.  I believe this only happens once every 4 years...Its rare!  LOL!  So I think its kind of cool that In Canada and the US they Celebrate the 29th of February as
 " Rare Disease Day". 
At the NIH hospital that Zach goes to in Maryland, they have a big celebration. 
You see, one of the hardest things about a rare disease/disorder is that its rare.  Not alot of information available and often not great treatments either.  However when we see all these rare cases together in a group...we don't seem so rare anymore.
Zachary has Chronic Idiopathic Hypoparathyroidism.  The prevelance of this condition is one in a million. This is a symptom of a greater disease.  We are waiting for his lab results to come back from Maryland.  Hopefully, by the 29th of February, we will know what rare disease Zach has. 
Zach last year at the Stollery radiothon
We are continually encouraged by your prayers and concern for Zach. 
God Bless

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